Words I Wheel By

Exploring disability issues and making sense of my lived experiences with my disability.

I’m Not Here for Your Inspiration, and Neither is Michael J. Fox

51 Comments

When I sat down last week to watch the premiere of The Michael J. Fox Show with my parents, I had high hopes that the show would handle disability well. I’m glad to say that overall, I was quite impressed. If you haven’t seen the show yet (and I recommend that you do), the basic premise is that Mike Henry (Fox), a husband and father of three children, is navigating a return to his job as a news anchor after leaving his position due to an on-air incident gone viral Internet video caused by his Parkinson’s disease. The show is a bit heavy on Parkinson’s jokes, but for the most part, the humor appears to be quite strategic. When Mike gives in to going back to work, he does so in the hopes that he will again be taken seriously as a reporter, rather than watched with pity or in awe due to his disability. I actually love the way the show handles this issue.

While Mike is trying to return to business as usual, nearly everyone he encounters fawns all over him for being so inspiring by returning to work and overcoming his disability – to the point where his new assistant at the news station breaks down in tears just because she is overcome with inspiration merely by being in his presence. I found this both comical and sadly reflective of reality. As I’ve learned over the years, the mindset that disabled people are inspirational just for living their lives is rampant among nondisabled people. Fox’s new show demonstrates just how ridiculous this view actually is. For instance, Mike specifically asks not to be exploited as an inspirational story to boost ratings upon his return to work. Instead, the viewers are let in on the joke as Mike’s producer claims not to be exploiting his disability while simultaneously showing an over-the-top sappy spectacle of a commercial advertising his return to television, set to the tune of “Hero” by Enrique Iglesias. Not only was this hilarious, but also I believe it is a great reminder of why disabled people need not be perceived as inspirational just for doing everyday things.

I really hope that the messages about disability in this show won’t go over the heads of nondisabled viewers, and that they will take away positive messages about disabled people, perhaps even reexamining the way society and most popular media influences their own sentiments. As it happens, I can think of one woman in particular, encountered by my mom, who could benefit from seeing such commentary on the theme of disabled people as inspirational. A little over a week ago, as my mom was getting out of our van, a woman approached her and said “You’re amazing!” My mom told me she tried to play along, asking “Why?” But all that the woman could say in reply was “You just are. You’re amazing.” And then she went on her merry way. Now, the woman was certainly not being rude or offensive, but she didn’t know my mom from a hole in the wall! It’s true that my mom is literally one of the most amazing people on the planet, but she is amazing for reasons a random stranger would never know just by looking at her in the middle of a parking lot. Being out in public in her power chair does not make her amazing – it makes her like everyone else who goes out with his or her family, regardless of her means of getting around. So, although the woman was trying to be kind, her compliment was not based on anything substantial, such as my mom’s achievements or personality. It was based on nothing more than my mom’s disability.

Unfortunately, the perception of disability as illustrated by the woman’s remark to my mom is all too common. Yet, when I pointed out why I felt that blatantly using disabled people to inspire and tug at the heartstrings of nondisabled people (in a post in response to the Guinness wheelchair basketball commercial) is both condescending and unfair, a few naysayers commented that I was being nothing more than bitter, angry, and cynical. Interestingly, it seems that The Michael J. Fox Show is in full agreement with me; they were just a bit more humorous and viewer-friendly about it. To the people who felt I was looking for reasons to be unhappy, I can honestly say I am not bitter, nor am I unhappy. I am quite happy with who I am and how I view the world. But, my perspective on using disabled people as objects of inspiration has been shaped by living in a body that has prompted innumerable unsolicited comments about how incredible it is to see me out in public for no other reason than that I am visibly disabled. I know these comments are not intended to be malicious, and I’m sure people think that they’re making me feel good or stroking my ego, but don’t you think it’s just silly to comment on what an inspiration I am if you don’t know what I’ve accomplished?

If you think my mom or I have accomplished something just because we leave our house and show our faces in public, then you certainly don’t know anything about us. While we have faced challenges due to our disabilities and we are proud to be part of the disability community, we are so much more than just our disabilities. I truly believe The Michael J. Fox Show has the opportunity to serve as a key resource to help nondisabled people see beyond the typical media depiction of disability as inspirational and heroic. I hope it will lead to the realization there are so many other reasons, disabilities notwithstanding, that my mom and I happen to be awesome!

(Remember, this is just an opinion piece. I’m glad to hear all opinions in response, but please be respectful and give constructive feedback.)

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For more thoughts on the premiere of The Michael J. Fox Show, check out these links:
Michael J. Fox a role model for disabled by Jennifer Laszlo Mizrahi, USA Today
Full Review: The Michael J. Fox Show, Disability Thinking

Author: Emily Ladau

Emily Ladau is a passionate disability rights activist and digital communications consultant whose career began at the age of 10, when she appeared on several episodes of Sesame Street to educate children about her life with a physical disability. A native of Long Island, New York, Emily graduated with a B.A. in English from Adelphi University in 2013. She is dedicated to harnessing the powers of communication and social media as tools for people of all abilities to become informed and engaged about disability and social justice issues. Emily works for Concepts, Inc. supporting key U.S. Department of Labor Office of Disability Employment Policy initiatives. She is also the Editor in Chief of the Rooted in Rights Blog, a platform focused on disability rights issues. Additionally, Emily runs an independent business, Social Justice Media Services, through which she manages online presence and communications for multiple disability-related organizations. Emily maintains a blog, Words I Wheel By, and her writing has been published on websites including The New York Times, The Daily Beast, Salon, Vice, and Huffington Post. Alongside her work as a writer, Emily has spoken before numerous audiences, ranging from a panel about the 25th anniversary of the Americans with Disabilities Act at the U.S. Department of Education, to the occupational therapy program at New York University. All of Emily’s activism is driven by her firm belief that if we want the world to be accessible to people with all types of disabilities, we must make ideas and concepts surrounding disability accessible to the world.

51 thoughts on “I’m Not Here for Your Inspiration, and Neither is Michael J. Fox

  1. Great post! You ask whether the disability themes will fly over most viewers’ heads, but I don’t think they will. Not all of them anyway. I think they are underlined and obvious enough. In fact, I personally mildly disliked how in each episode they did some sort of direct-to-camera bit where the “moral” was explained explicitly. Still, given how unfamiliar people are with these concepts, it might be necessary to spell it out for them. But wow … two episodes, one on “inspiration porn” and the other on self image. Those are fairly sophisticated disability issues, way beyond bland pleasantries and feel-good platitutdes.

    • Thank you, Andrew! I quite enjoyed your post on the topic as well. I definitely agree that at times, the disability themes were “in your face” just a bit too much. But as you say, it was fantastic to see the show dealing with disability issues by digging deeper than surface level!

      • It’s funny, but as I wrote my review, I came to like the episodes better! I hope you’re going to write about “Ironside”, too. I’ll look forward to your thoughts if you do.

        I’ve read some of the other comments, and think that maybe one way that having a disability is different from other “minority” experiences is that we are constantly confronted with comments that are genuinely annoying and disheartening, but at the same time are well-intended. Coping with that contradiction is part of our common experience. It happens so often that none of us can be cool about it all the time. Sometimes, we have to speak up, whether or not we upset someone. And explaining that to others is part of the education process, too.

      • I’m excited to read your full reviews! I’ve just opened them up in a new tab to read as soon as I reply to you! I do plan to watch “Ironside,” and I’m interested to see how the pilot episode plays out. I hope you’ll be writing on it too!

        Also, thank you for your words regarding other responses, because I needed to hear that. I couldn’t have said it better myself. I have learned that the education process is ongoing, and at times challenging, but well worth it.

  2. Well written. People do look at the disabled like wow your outside and how wonderful. It gets on my nerves half the time. But ques what about the other side of things when all you do is get the worst comments given to you. I wish someone would write about that.

    • Thanks for reading and commenting, Michele! I share your feelings, and have experienced comments that were actually rude and not well-meaning. It hurts, but we have to keep trying to educate!

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  4. Emily, I’m enjoying your blog very much! You write with such honesty and insight, yet your voice is charming — just the opposite of “bitter”! I’d like to see your blog on the Huffington Post someday.

  5. I love your blog. When I first saw a description of it on SITS, I didn’t quite grasp the nature of your blog and had interpreted it as blogging about social injustices and related to my former line of work in human services. I couldn’t have been more wrong. I am so glad I stopped by. I love your content and voice!!

    • I’m enjoying your blog as well! And your note about not quite grasping the nature of my blog at first is very important to me, because I need to work on the “elevator speech” about it to make it clear! I think it’s great you used to work in human services. I appreciate you taking the time to stop by and read! It means a lot to me!

  6. This is fabulous!!

    I have to admit, I’m a sucker for someone who sees her mom (and more) as awesome based on who she is in her heart and what she’s accomplished. I spend most of my days bragging about my sons and my mom!

    Also, I’ve been walking around singing that song by P!NK–I’m not here for your Entertainment– but, thanks to this post, have changed the lyrics for my own fun! My boys and I are crooning,”I’m not here for your inspiration! You don’t really wanna mess with me tonight. Just stop and take a second! I was fine before you walked into my life…. “etc.

    Thank-you for sharing this important issue so clearly. And thank-you for offering my boys and I a new way to love an old song!! tee hee!

    ~Tsara

    • Hi Tsara! Great to hear from someone else who adores her mother! And I have to admit, after I wrote the title, that song started going through my head as well! Glad I inspired a sing-along! 🙂

  7. Most days I read Dear Abby in our daily newspaper, and fairly often a person in difficult or not run-of-the-mill circumstances is writing to voice complaint over a well-intentioned but misled person whose words or actions has inspired irritation or upset instead of finding favor. Most usually the querent recognizes that no harm was intended, in fact often the opposite, but are still very upset and are writing to ask what appropriate action they might take to make the offending person/s aware of their misbehavior. Most of the time when I read these, I wonder why the writer doesn’t stop at ” I know they meant well”. After reading your article, I find myself wondering this very thing. Yes, it would be great if we all knew the right thing to say and do all the time. But the truth is, we don’t know each other’s experiences, all we know is our own. Because of this, we will blunder. We will say and do the wrong thing. We will unintentionally underline something to someone that they would prefer unremarked upon, and often we will do the opposite, not saying something when our interest and compassion is needed. And yes, it is okay for us to get irritated sometimes that others just don’t get it. However, when we feel entitled to someone else’s understanding of our experience, and are angry when we don’t get it, we cease being understanding ourselves. It is fairly easy to recognize a well-meaning person. Expecting others to understand our personal experience more than anyone else is understood undermines the very argument that we should all be seen and treated equally as people regardless of special circumstances. If understanding is precious, we must hold ourselves to the same standard. Otherwise really what we are demonstrating is that we can be as unintentionally clueless and misled as we perceive those who offend us to be.

    • Samantha, your response was quite thought provoking and I really appreciate you taking the time to write it. I agree that blunders, as you say, are a part of life for everyone. However, my goal is to provide some insight on my experiences to well-meaning people who genuinely want to be kind. I do not demand understanding, and I don’t get angry. I usually smile and go about my day, no matter how many times I hear the same comments over and over. And while I think you’re right that no one is entitled to expect everyone else to fully understand every detail of their life experiences, I believe there is no harm in calmly sharing our thoughts and feelings to help us better relate to each other as human beings.

  8. Thanks for this — the “tug @ heartstrings for viewer points” tends to annoy me, period, and the disability angle in particular. I much prefer when characters are just shown to be human. My mind drifts to Twin Peaks, where people with disabilities were part of the story — Donna’s mother in a wheelchair, a dwarf as a recurring character, and a one armed man (Donna’s brother, who was autistic, wasn’t explored as deeply, but he was still there.) All of them were portrayed as just living life, and as part of the community.

  9. As for your mom, she has raised a daughter who has graduated college with honors, is using her gifts and talents and pursuing her goals… that qualifies for amazing without regard to disability. I work with individuals with disabilities and can assure you that not all parents of children with disabilities are ‘amazing’ That being said, it certainly appears to this stranger that your mother did some things right.

  10. great review! made me want to watch the show! I def agree with you, I think we look at disabled people or people with anything different than the “usual” as being unable to do anything for themselves or just plain awkward around them, when in reality we are all just trying to get through the day.

  11. Your post is so thoughtful and well written! I didn’t get to watch the premiere of the show but I’m definitely going to tune in to the next episode. See, I was curious how this show was going to play out when I heard it would be dealing with his Parkinson’s. It sounds like a really great premise. I just admire how much he has done for the cause in his personal life. I really love how you shared your perspective on how disabled people are viewed. Their not looking for an award for going to the supermarket…it’s just everyday life.

  12. I saw the previews for the show and forgot when it was but I wanted to watch it! I love him. I’ll have to check it out and watch it online :). I think Lauren’s comment above says it perfectly.

  13. What is your advice to people such as myself who go through life with an invisible malady? Without medical aid people would see my muscles rippling on their own and nerve ends pulse incessantly, along with other nerve ends stabbing pain shooting and make me flinch in pain. The sad thing is I LOOK fine, healthy etc.

    • Hi Lamargo! Because I have a visible disability, my experiences are a bit different than yours. That being sad, from what I have learned from my many wonderful friends who have invisible disabilities, the most important thing is to advocate for your needs and take care of yourself. Also, the key is to focus on how you perceive yourself, and not on how others perceive you if they know you’re disabled! I hope this helps, but don’t hesitate to reach out again if you’d like!

  14. I loved the Michael J Fox show for all the reasons you mentioned. I’m so glad to have his talent back on TV and hopefully the show will offer some subtle lessons while focusing on simply being a well written and well acted comedy! Great post, Emily!

  15. I missed the show but really wanted to see it, I will have to check it out next week! Thanks so much for sharing, great post!

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  16. Well see, the difference is, Michael J. Fox IS inspiring, and you’re not. Simple truth.

    • You missed the whole point of the post. Also, please refrain from disrespectful comments, as this is just an opinion piece.

      • Oh, you’ve got to love the Internet, where sad people can vent their rage against people for what they didn’t actually say.

      • Oh yes, I’ve definitely gotten some frustrating comments attacking my character but I realize not everyone will agree with my views. Perks of putting myself out there!

      • You’re much nice than I am, Emily. Unless that was a joke by someone you are fond of, that comment was ignorant and mean just for the sake of being mean. But yours is the better perspective.

      • Sadly, that comment was from a complete stranger. I’ve gotten some comments so rude I didn’t even allow them to be published. It seems I’m learning the hard way what happens when people are free to say whatever they want. But your responses have been kind and provided much needed encouragement, so thank you!

      • You don’t see a good side of human nature when you put yourself out there, I’m sure. Sorry to harp on it — I just hate bullies. You go ahead and keep on doing your good work.

      • I plan to power past the cyber-bullies! I just embrace and appreciate the support I do get!

  17. I enjoyed the show and think I will keep watching it. I thought the show so far covered everything in a good way and there’s no doubt Fox is working well with it. I’ve always been a fan of his, so hopefully it will continue to be a good show! Excellent piece here and well done! 🙂 Stopping over from the Weekend Wander Blog Hop.

  18. I have mixed feelings about my 17yo daughter being an inspiration to others. Yes, that would be a good thing that she might help someone and somehow improve this world. However, what a “price to pay” for inspiring others….. (Stopping by to share back some comment love from SITS and LoveThatMax.)

  19. I concur with both the thoughts expressed in this entry and those expressed in response to the Guinness advert. As an aside: Nice to see a fellow Adelphi alum done good!

  20. I read this, it’s interesting. I had a stroke when I was 15; as a result I have a limp now. Some people would look at me and other would come up to me say good comments or curious people would ask me. One day I went to a meeting (who were all able) a man approach me and said ‘Good on you, my friend who has a disability doesn’t even want to get up’ from then on I’m actually quite positive or sometimes I think I am a Superstar …….why not ? 

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  22. I think the concept of people finding disabled people automatically inspiring is because of the extremely low expectations society seems to hold of disabled people. What also doesn’t help is a lot of people (re: parents) tend to look/ask for pity for their child’s situation when they haven’t yet accepted or come to terms with it. A lot of people also see physical disability as an indication of mental disability – which is usually not the case at all! For some reason, once someone sees something different about a body, they think their brain was affected. I witnessed it first hand in the treatment of my father, who died from complications to Parkinson’s three years ago. He was a very intelligent man, with more than one university degree, but the minute his speech was slurred or his hands shock, he was spoken to like he was a complete idiot. And that came mostly from health professionals. They would talk over his head to me and ask me questions about him that he could answer for himself.

    I have not watched the show, but I hope it helps to change perceptions. I know a lot of people still mix up Parkinson’s with Alzheimers. We all have a long way to go!

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